Friday 14 October 2016

A Typical Morning - Sensory Style!

I've had several conversations recently, with various lovely people, about Sensory Issues.  It struck me, from these conversations, that there are so many things I take for granted now that actually aren't part of everyone's lives.  I wondered if reading my posts sometimes people are thinking - pah, her children don't have Autism or Sensory Processing Disorder! Look at all the stuff they do - there's no way they have those issues...... 

So I just thought I would take a few minutes to tell you the usually unwritten tale of our morning so far, on a typically ordinary day.  Today is not a Bad Day, it is actually a Good Day. Today is the best kind of day it gets, and yet this is how it has unfolded thus far....

DS has wet the bed - for the 23rd day in a row.  He is 7.  In the body of a 10-11 year old.

So, 23rd day in a row of wet bed.  This is because at the moment he is over-tired.  This is because of Sensory Issues - he has had a loose tooth and has a blocked nose (probably because of the tooth).  All of this alters the world ENTIRELY for him, as it is not how Things Should Be.  Consequently this causes a breakdown in communication between his brain and his body and a breakdown of the order of things.  This causes wakefulness, amoungst other things (a MASSIVE increase in Stimming - Self Stimulatory Behaviour - and physical manifestations).  So, the knock on effect of that is a wet bed.

Two weeks ago I replaced the mattress, and mattress protector, and we now have a fully waterproof mattress (rather than one sided) and I do 3-4 loads of washing a day to clean his bedding, and try and keep up with everyone elses washing at the same time!

So, that was the first thing of the day.

The Tooth Saga continues to affect our entire day today - as yesterday he pulled it out.  He couldn't bear the sensation any longer, and literally pulled it out of the gum.  In doing so he has broken the tooth.  This is the THIRD time he has done this :-(   So we are off to the dentist today to be X-Rayed and see whether they need to remove the remaining shards of tooth (Gee Whizz that's gonna be a whole Humdinger of fun right there!!!)   In the meantime, we are surviving with Calpol, ice cream and cold milk...... 

It also means we are going to have to get the train, as today DH has had to take the car we share to work so that he can take it for new brake pads/ discs as I was not going to do that on top of the whole dentist thing with two stimming autistic children in tow!

So, back we are to getting DS cleaned and dressed - this involved him wandering off and drawing the numbers from 14 to 100 in permanent marker on printer paper??  (I know!) Which of course went straight through to the table cloth.....

Amidst this, DD is wandering around, not quite sure what to do with herself as no-one has prompted her in to Start Up mode!  She is unable to think a cohesive thought such as 'breakfast' or 'get dressed' without prompting (SO MUCH PROMPTING!!!). She is 9.  Yes, 9.  And yes, she needs this prompting ALL THE TIME.  EVERY DAY.  ALWAYS. 

As I was busy, doing Different Things, I was unable to Prompt her - so she wandered and roamed, quite literally lost and confused - almost like a robot without programming :-(   Eventually she let the rabbit out!  Then got Super Stressed that the rabbit was out and she realized (more than 2 hours after getting up!) that she was now cold and hungry....   Of course there was much screaming, and a lot of pointing at the floor and non-verbal signals (hard for those that know my highly eloquent girl, to imagine) until we established - with much help and prompting from Mummy - that she needed to put the rabbit away, get dressed and have some breakfast (she still hasn't by the way! She is dressed, in a Halloween witches costume, but still nothing to eat or drink!).  I am still prompting (3 1/4 hours since she woke up!) - we will get there, eventually!!

Hmmm, what else - oh yes, put the rabbit away!!  Make sure other pets are fed and watered and whatever they need (I prompt, they do :-) )

DS is now dressed, in acceptable feeling clothing - this means changing yesterday's socks at lightning speed as we currently have a Thing about bare feet.  He cannot bear the sensation or the look of bare feet.  This is one of the (many!) reasons he wants to quit gymnastics, as he sometimes has to take his socks off.  It also means none of us can take our socks off in his presence, at all, ever.

Then is means finding the softest pull on clothes.  Pants are currently on the IN list, so that's a battle we're not having to have at the moment :-)

For DD, same - although she prefers not to have socks as they "crunch" or "squash" her toes - so we do have to have that battle as, at the moment, his inability to tolerate bare feet supersedes her desire not to wear socks (as we do have a number of 'acceptable' pairs of socks!).  But everything else must be soft, button-less and pull on. It CANNOT be tight and it CANNOT be loose and floaty.  Unless it is a dressing up thing - then she has to squeeze in to it like a sausage!!!!

Anyway, so back to empty the washing machine and put on the second load.  Check train times for journey to dentist later.  Make sensor-ally acceptable packed lunches, as we will be Out at lunch time, due to Dentists appointment and cannot rely on being able to get something acceptable to the palate !!   Bear in mind at this point please that before I had children I was very much in the "Children will eat what they're given, wear what they're told, do as they're told!" camp!  Oh, how life taught me a "bite-in-the-ass" lesson!  Lmao!!

So yes, lunch needs to be vegetarian (their choice, they won't eat a dead thing!).  For DD it must pretty much be white or pale yellow and not touching any other food group whatsoever. It must not be wet, blended or a mixture of food (ie she can have a white bread cheese sandwich and some sliced cucumber in a separate pot) but DO NOT put the cucumber in the sandwich - this will make you an unimaginable, despicable, tortuous &*(%$^# ! DS on the other hand is slightly easier to please, as long as you are doing a brown bread peanut butter sandwich.  If it is anything else at all you are pretty much f****!  This presents a massive problem now there are so many Nut-Free Zones :-(  In which case we are probably having milk, and maybe a flap jack!

So now we are doing Halloween colouring, while I type this to you good people - to share, as I've said, that this is a typical morning on a Good Day.  It is 10.30am, so we still have the lion's share of the day (and night!) still to go!

Oh dear God and now DS has hiccups!!!  Action stations people ;-)

:-) :-) :-) :-) :-)

Wednesday 12 October 2016

Awesome Autumn

Please tell me I'm not alone in not quite believing how quickly October has crept up on us?!  October???!   Wasn't it summer, like yesterday?

So, we've had lots of outs-and-abouts this past week.  At the weekend it was Granny's birthday so we took her out to one of our favourite National Trust places for lunch and a nice autumn walk :-)  It turned out they had some sort of Autumn Festival event on, which was a bonus.  Lots of lovely hands on stuff for the kids to get involved in.  They made butterflies, pressed apples to make (and drink!) fresh apple juice, played African drums (tenuous connection there!  I think the idea was that they had numerous instruments made from dried gourds etc :-) ), attended a fab talk about bees and helped with the honey harvesting AND ground wheat to make their own bag of flour that we brought home with us!  This was all, quite literally, DS Heaven :-)

The following day we went to a FAB Fun Day, organized by a lovely new Home Ed friend (that organized the Home Ed camp we went on this summer) raising money for Alzheimer's research.  She had done an AMAZING job pulling it all together - they had stalls, a band, food, all the firm favourites like tombola, raffle, hook a duck plus face painting, glitter tattoos, bouncy castle and climbing wall!  Well DS and DD were back in Heaven again!  They LOVE all this kind of stuff but always found the school fairs too over-crowded and competitive.  This was laid back and just great fun, no pressure on anyone to do more, win more, spend more.  We stayed for the whole entire time, and won an Usbourne books voucher in the raffle :-)  And about a million tombola prizes! :-)

Monday kicked off with a big trip I'd organized to The Tower of London.  44 Home Educating adults and children, set to do a digital mission at the tower!  What a wonderful day!  The sun shone -


 
and there was just so much to see and do, and LEARN :-)   And the kids had an absolute blast, running around the tower and grounds with their iPads, trying to solve the clues on the Digital Mission to help Arbella Seymour aid her husband, William, to escape the Tower in 1611.  Pleased to say we succeeded :-)

Yesterday we were at home, yay! The kids have continued working on their USA projects.  DS watched a couple of educational videos about Prospecting and The Gold Rush for his Wild West Project -


And DD continued working on her State Flowers display -

 
(which I happen to think is just Stunning :-) ).

We spent a couple of hours out in the garden together, reading, chatting, playing.  DS made his own bow & arrow out of wood and string and made himself a target with our giant chalks. I was surprised how far his arrow flew! :-)   While DD sat with me writing her birthday party invitations.  The kids have decided to have a joint party this year, as they share many of the same friends and, well, actually like each other these days! :-)

And while we were out there, DD found this magnificent little fellow -


I'm reliably informed (by a couple of fellow HE Mums) that he is a Pale Tussock Moth caterpillar.  We've looked him up on the internet, he is :-)  So we looked up what he eats etc and went on a quick nature walk where we picked/ cut oak, beech and birch for him, filled a tank with an inch or so of soil (that she has a water spray to keep moist), put in our twigs etc and carefully lifted him in.  He climbed up the tallest twig, appeared to drink a few droplets of water and then nestled down on a birch leaf.  This morning DD woke up to find he has already begun spinning his cocoon!  I can't tell you how excited we all are!  I'll get some pictures to upload of his progress :-)

Last night the kids had Cubs and DS got a special badge for having belonged to the Scouting Group for 2 years now (he was previously a Beaver). He was SO proud of this :-) 

This morning, after inspecting the Pale Tussock Moth cocoon, DS decided to make some Lego (customizing his X-Wing that DH got him in The Daily Mail on Saturday!) -

 
and then we headed off for a nice splashy walk in the rain (aka Mummy needed to pick up a prescription and buy stamps!)

DS loves the rain and was feeling very happy and like this was a Really Good Day, so he decided to make a tea party!


DD continued working on a writing a letter in German (having received one from a lovely HE friend, also just starting to learn German).  This led to another friend asking me if she would like to write to their daughter, in either French or German, as she also is starting out :-)  DD very much DID want to - as she loves writing and receiving letters, and making friends this way.  So she opted for French, having just done German, and she popped those both in the post this afternoon (after having some cake of course!)

Besides this we've read, coloured, created, helped each other with chores, talked and listened.
I just LOVE how Home Ed gives the children the time and space to pursue their own interests, at their own pace.  I love that they love learning, and that everything is an opportunity for learning. I love that, right now, we are able to make this work as a family.  I hope and pray it can continue for as long as we need it xx






Tuesday 4 October 2016

Re-connecting

Life has been super busy recently.  At the weekend we headed out for a walk in the woods where we found some super bugs -



And learnt all about these gorgeous fellows (one of my personal faves!) at the Nature Centre, as they had a rescue centre visitng :-)


Then, on Monday, Mummy was struck down with a mystery virus of some kind, so we've had a couple of quiet days at home.  It's actually been a real blessing in disguise and has given us some much needed time out, and time to reconnect and just "be" - rather than rushing from place to place.

The kids have pretty much amused themselves with their own choices of activities.  Here's a little look at some of the things we've done over the past couple of days.....


DS decided he would make a start making his own Solar System from a kit he got for Christmas :-)



DD did lots, and lots, and lots of colouring :-)  And lots, and lots, and lots of reading!


She wrote more letters to her friends, and sealed them with her wax sealing kit she bought at The Tower of London a couple of weekends ago :-)


DS spent the morning Scratch programming on the computer, then decided he would do some construction with his Moon Sand :-)


And DD got creative with some modelling clay :-)


And they fed, cleaned and cared for all of their pets (a stick insect, a goldfish, a rabbit and a tortoise) and made sure they kept their bedrooms tidy.

We also played a few Lego games together, had cuddles, DS built a little camp in the hall way to read books in, and they had lots of outdoor play in the garden.

Mummy did the absolutely bare minimum - bit of washing, making the meals, general tidying and catching up on her admin and scheduling for the rest of the year.

I hope this virus is just a 48 hour thing, but I'm glad we've had the opportunity to catch up and just hang out a bit :-)

Sunday 2 October 2016

Awesome FREE Colouring Pages

Oooooh, so DS fancied doing a bit of Sunday night colouring this evening - and we just found this fabulous web site that has literally hundreds of FREE colouring pages!  You can even personalize them with your child's name before you print them!!  :-)

We opted for Lego Chima and Angry Birds Star Wars, with Totally Spies & Monster High for DD.



They've also got some AMAZING educational colouring pages - check out the Space  Travel History for example.  Just awesome!

We also printed some Harry Potter ones, as DD is currently reading Order of the Phoenx :-)


There's LOADS more to explore, so we are definitely bookmarking this as a favourite and just wanted to share it with you too -

http://www.kids-n-fun.com/coloringpages

Enjoy! :-) :-)